Research study of the National Data Guardian’s findings. It is important to note that this piece of work is not a comprehensive representation of the views of the public and was not intended to be an in-depth A copy of all the responses can be found in Appendix 2. This summary includes a selection of comments to provide a flavour of theresponses we received. A total of 124 respondents were members of the public, a further 22 identified as health and social care professionals but responded in a personal capacity and 1 individual stated that they were responding in a formal capacity. This document brings together the 147 responses we received between 5 August and 7 September. To support this process, we have also been collecting people’s views on some of the broad principles behind the proposals through an online Survey Monkey poll promoted through the Healthwatch network. Over the course of summer the Healthwatch network has been helping to raise public awareness of the National Data Guardian’s report and the opportunity for people to feed in their views via a formal Government consultation. This element explored how the health and care sector should secure the consent of people to use their data, both for supporting the research andĭevelopment of new treatments and planning how services should be delivered in the future in order to improve care. Information governance, cyber security and the sanctions for those who failto adequately protect patient information. Last year the Secretary of State for Health appointed Dame Fiona Caldicott as the new National Data Guardian (NDG) to review use of data in the NHS looking at two specific areas in order to build public trust: 1) Data Securityĭeveloped in conjunction with the Care Quality Commission, this part of thereview looked at how the NHS should be handling data including issues of People's medical records have a vital role to play in both informing medical research and shaping changes to health and social care services Engagement by the Healthwatch network over the last two years, at both local and national level, has shown that the public understand this and are broadly willing to share their data as long as the right safeguards are put in place.
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